Wednesday, November 12, 2014

Day 7

I'm having to get refills on Christopher's prescriptions and had to call the Drs to find out how log he'd be on them (larger quanitties are much cheaper from a compounding pharmacy).  The reply was 3-6 more months.  And the addition, possibly of another script.  Though erik and I are both nervous about this script.  It's heavy duty with side affects like depression and anxiety.  I can't imagine all that in a vibrant 4 yr old.  In some ways I see him coming out of this, seeming better, but in other ways, it's worse.  It comes in waves.  I just wish it would go now.  Kind of like Marvin k mooney.  Will you please go Lyme disease and bartonella (harder to treat than lyme) and leave my child alone.  Unscathed any more.  He's already developed a sense of trepadation and trauma from all the Drs he's seen.  And while I know it's good and helpful but I feel like an awful parent having to subject my innocent, unknowing child to 8 vial blood draws, medicines he cant stand to take, one med that turns his pee and tears orange.  Can I have my son back now?  Enough.

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